Special Education Today

24 May 2010

Lead Poisoning & Special Ed – Revisited

Contains LeadImage by The Rocketeer via Flickr

I recently ran a post about the outrageously high level of lead poisoning in the children in the Detroit public school system. I'm still alarmed. How are we pumping these kids so full of lead.

A couple of astute readers brought up the connection that lead poisoning is at least one cause of autism or autism symptoms in young children. The connection with special education law becomes somewhat clearer.

Here , for example, is a study published in 2005 that further develops the link between lead poisoning and autism. The results are frightening.

Anybody interested in waging a campaign to detoxify our kids? This is apparently a very serious issue. What are the levels of lead poisoning in the children in your community? Do you know?

I also wonder if the poverty issue is separate from or a part of this issue. Do poor kids eat and breathe more lead?

This is 2010. Can't we find a way to keep lead away from our kids? What are your thoughts?






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6 May 2010

Connecticut Enacts Important Autism Legislation

Connecticut State Quarter

Another late night at the Capitol last night, showing support for the passage of HB 5425.  Around midnight, just before the legislative session ended, the Senate voted by consent (unanimously) to pass HB 5425.  Yes, this is the same bill that previously included very concerning language regarding Connecticut’s Burden of Proof in special education due process hearings.  However, thankfully, that language did not make it into the version of the bill which the Education Committee presented to the House.  So, the bill as voted upon by the Senate last night, and presumably signed into law by the Governor in the next couple of weeks, thankfully leaves the burden of proof untouched.

What’s more, this new piece of legislation offers much needed protection to students with autism spectrum disorders, to make sure that people who are providing ABA (applied behavior analysis) services to them through their IEPs are actually credentialed to do so.

Document

The specific language of Section 2 of HB 5425 to which I refer reads as follows:

Sec. 2. (NEW) (Effective July 1, 2010) (a) On and after July 1, 2012, a local or regional board of education that is responsible for providing special education and related services to a child, pursuant to section 10-76a of the general statutes, shall provide applied behavior analysis services to any such child with autism spectrum disorder if the individualized education plan or plan pursuant to Section 504 of the Rehabilitation Act of 1973 requires such services. (1) Such services shall be provided by a person who is, subject to the provisions of subsection (b) of this section, (A) licensed by the Department of Public Health or certified by the Department of Education and such services are within the scope of practice of such license or certificate, or (B) certified by the Behavior Analyst Certification Board as a behavior analyst or assistant behavior analyst, provided such assistant behavior analyst is working under the supervision of a certified behavior analyst. (2) A teacher or paraprofessional may implement the individualized education plan or plan pursuant to Section 504 of the Rehabilitation Act of 1973 providing for such applied behavior analysis services, provided such teacher or paraprofessional is under the supervision of a person described in subdivision (1) of this subsection. For purposes of this section, “applied behavior analysis” means the design, implementation and evaluation of environmental modifications, using behavioral stimuli and consequences, including the use of direct observation, measurement and functional analysis of the relationship between the environment and behavior, to produce socially significant improvement in human behavior.

(b) If the Commissioner of Education determines that there are insufficient certified or licensed personnel available to provide applied behavior analysis services in accordance with the provisions of subsection (a) of this section, the commissioner may authorize the provision of such services by persons who: (1) Hold a bachelor’s degree in a related field; (2) have completed (A) a minimum of nine credit hours of coursework from a course sequence approved by the Behavior Analyst Certification Board, or (B) coursework that meets the eligibility requirement to sit for the board certified behavior analyst examination; and (3) are supervised by a board certified behavior analyst.

(c) Nothing in this section shall be construed to require the inclusion of applied behavior analysis services in an individualized education plan or plan pursuant to Section 504 of the Rehabilitation Act of 1973.

For years now, I have been frustrated when I discover upon a little investigation that what the school district is telling my clients is an “ABA program” is, in fact, not.  Since so many schools know that parents of children with autism are requesting ABA services, far too many have just started calling the behavioral support they’re already providing ABA, even when there is no Board Certified Behavior Analyst (BCBA) remotely connected to the program.

Many of these faux ABA programs fall into the realm of “just because you say it, doesn’t make it so.”

(There is a corollary of the “faux ABA” approach, by the way, which is when a BCBA actually IS connected to the program, but the school district only authorizes their involvement on a very occasional, limited basis…like say twice a year for a half an hour to consult for 15 students.  I call this “diet ABA,” because it’s so watered down.)

Failing to have legitimately trained staff providing applied behavior analysis services is problematic for any number of reasons.

For example, if the Parents and the school are trying to ascertain whether ABA is an appropriate intervention for the student, it would be useful to know if the kid is, well, you know…actually getting it.  We also don’t want kids with disabilities to be  missing valuable intervention time while unreliable methods are being used.  And of course, there is the risk that school districts will spend much-needed resources on people who are claiming to have skills that they don’t.

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All of these factors came into play in an outrageous situation which is part of what became the impetus for the legislation passed last night.  A woman held herself out as qualified to provide ABA services to school districts, and she was written into several children’s IEPs to do so.  It appears she had absolutely no credentials, and had even fabricated degrees.  It further appears that the school districts in question did little to check into her background, even though she was paid over a hundred thousand dollars by one school district alone.  Nice.  She currently has a number of criminal charges pending against her.

Many of the children with autism who received services from this imposter are or were non-verbal.  They couldn’t tell their parents when something was wrong.  How very scary.

The Parents involved in that matter did more than just get angry; they got motivated and organized, and they sought to change the law so that this wouldn’t happen again.  Along with the extraordinary stewardship and vision of Suzanne Letso of the Connecticut Center for Child Development, the strong support of Connecticut’s Attorney General, and the ultimate commitment and hard work of many state Senators and Representatives, they got it done.  Good for them!  Special mention must go to Sen. Gaffey, Rep. Fleischmann, Sen. Duff, Rep. Lyddy, Rep. Abercrombie, and Sen. Crisco.  Having spent many hours in Hartford attending Committee hearings and other sessions, their tireless patience and interest has my genuine respect.

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Now, before all the spin starts and school administrators try to scare people about what this law means, let me be clear:  nothing in this new legislation requires that ABA services must be included in a child’s IEP.  It only says that, if the child’s IEP team decides they are necessary, they are to be provided by people with credentials.

Heck, we require that massage therapists have documented credentials; why not people  providing ABA to our most vulnerable children?

Now that we have this legislation passed, I guess the next step will be to make sure that school districts comply with it.   That and hoping that from now on, perhaps schools will be doing background checks on anyone who works with kids.  But that’s a different post.

12 March 2010

The world needs all kinds of minds

Filed under: Autism, TED Conference, Temple Grandin, free, minds, video — Patrick Black @ 10:00 am


Temple Grandin has long been someone I've admired, respected, and learned from.  As a person who has autism, an educator (not in the traditional sense), and designer she has made me understand people with Autism more.  This year she was given the opportunity to speak at the TED conference.  TED is basically a showcase of some of the smartest people in the world and they are given 18 min. to talk about whatever they like.  Temple chose to talk about how we need "all kinds of minds" in our world.  I happen to agree wholeheartedly with her.  If you have a chance you need to take 20 min. and watch this video!


The world needs all kinds of minds


Patrick


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13 February 2010

Nonprofit provides technology job training for people with autism

Filed under: Aspergers Syndrome, Autism, Inclusion, Practical/ Life Skills, Special Education — Maria Angala @ 10:20 am
A suburban Chicago nonprofit group is providing job training aimed at matching the strengths of people who have Asperger's syndrome or high-functioning autism with jobs in technology fields. Aspiritech helps people with the disorders find positions in computer-program testing and data entry, which require the performance of highly repetitive and detailed tasks. The nonprofit's founder said gains go beyond participants' financial earnings. "It is structure to the day," she said. "It is sense of self-worth, value." National Public Radio (text and audio)

7 February 2010

Special Educators are trained to use defibrillators

Deputy headteachers from Glendene School Craig Platt and Liz Coxon with teacher Mark McNichol and the new defibrillator which has been donated to the school.

Educators at a school in England for students with special needs are being trained to use an automated external defibrillator that was donated to the school. "The aim is that all staff members will be trained to use it," one teacher said. "We hope that we will never need to put it into action, but it is good to know that we would be able to bring a child or adult round in an emergency. They really can make the difference between life and death." Sunderland Echo (U.K.)


3 February 2010

Is Special Ed Too Litigious or Not Litigious Enough?

Courtroom One GavelImage by Joe Gratz via Flickr



The number of due process hearings in special ed disputes has increased nationwide over the last two decades. This link is to a pennlive.com article discussing the topic. The article quotes Professor Perry Zirkel for some of the reasons for the increase, including the recognition of autism and ADHD as disabilities for purposes of eligibility.

I have great respect for Professor Zirkel and I generally agree with him. One area where we differ, though is whether the special ed hearing system is overlegalized, as he contends. I contend that in the ten busiest jurisdictions, the system probably is overlegalized. In other places, especially in rural or isolated areas of the country, however, I think that the system is underlegalized. I am active in ACRES, the rural special education organization, and many of their members agree with me on this point. There are many places where parents, and sometimes even school districts, cannot find a lawyer familiar with special ed law. As the article above suggests, the income of the parents may be the best indicator of whether they can assert their rights under the procedural safeguards.

I don't think that increasing the number of due process hearings is a goal, but if the problem is that there are parts of the country where legal representation is unavailable, that is not healthy. Similarly, if there are people not assessing procedural safeguards because they are not wealthy, maybe we should design a new and different system.

What has been your experience? What do you think?



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22 December 2009

Kim Peek, The Real ‘Rain Man,’ Has Died

Filed under: Autism, Famous People with disabilities, Special Education — Maria Angala @ 9:38 am
You may not recognize his name, but there's a good chance you remember Rain Man, the 1988 movie starring Dustin Hoffman and Tom Cruise.

Hoffman's character, a mega-savant, was based on Kim Peek.

As NPR's Howard Berkes reports from Salt Lake City, where the 58-year-old Peek lived:

He "had severe mental handicaps but reportedly remembered everything he read and heard. Peek had difficulty with simple things like turning on lights or dressing himself, but his memory was legendary. Give him a date and he'd describe its events. Name a place and he'd name the zip code. He reportedly memorized every word in 9,000 books." (NPR.org)

3 December 2009

Story about sibling with autism is featured on Disney Channel

Filed under: Autism, Special Education — Maria Angala @ 10:29 pm


The Disney Channel is regularly airing a two-minute segment called, "The Time I Realized My Brother was Different," featuring one child's experiences with a sibling who has autism. The segment is based on a book by Michigan 13-year-old Melody Igafo-Te'o, who wrote about life with her older brother, Michael, who is autistic. "Some people just think autism is a weird problem," Melody said. "... I hope that they won't think that as much -- that it's like having a regular sibling and just a little different." MLive.com (Michigan)

5 November 2009

Play showcases story of raising child with autism

Filed under: Autism — Maria Angala @ 11:11 pm
"Autistic License" by Stacey Dinner-Levin will be the season opener for Harbor Light Stage's 2009-10 Bold Face Play Readings series.

A docudrama about raising a child who has autism is set to take the stage at a New Hampshire theater this weekend. "Autistic License," was written by Minnesota playwright Stacey Dinner-Levin who has a child with autism. "Theater humanizes issues. It puts a beating heart inside of facts," said the theater's creative director. The closing performance Sunday will be followed by a symposium that will include special educators. Foster's Daily Democrat (Dover, N.H.)

Studies to look at video games that could help people with disabilities

Filed under: Autism, Technology in Education — Maria Angala @ 11:01 pm
The Robert Wood Johnson Foundation announced $1.85 million in funding for nine research projects involving the design of video-game technology to help people change behavior, manage chronic illness and improve communication. Among the projects that won funding: A study that will look at the effect of facial-perception video games on brain activity and facial-perception skills in children who have autism; and research that will examine if video-game use decreases the chances of people with Parkinson's disease suffering falls. Computerworld

TEACHER SOL 2009-11-05 22:57:00

Filed under: Autism, Teachers/ Educators — Maria Angala @ 10:57 pm
AMBASSADOR—Zak Kukoff, a freshman at Westlake High School, developed a program that educates non-autistic children about the special challenges of the disorder and encourages them to integrate with their autistic peers. Autism Speaks, a national organization, has adopted Kukoff’s ambassador program. IRIS SMOOT/Acorn Newspapers

A California high-school freshman has created a program that offers guidelines to help students mentor and better understand their peers who have autism. Zak Kukoff says Autism Ambassadors uses role-playing exercises to teach skills to students with autism that they can use in everyday school situations, and it teaches students without autism what living with the disorder is like. The program is "easily adaptable to any grade" and has been implemented at 12 schools, Kukoff said. Autism Speaks, the nation's largest autism advocacy group, has named the program its national peer-leadership initiative. The Acorn (Agoura Hills, Calif.)


3 November 2009

Educators developing strategies for teaching students with autism

Filed under: Autism, Special Education, Teachers/ Educators — Maria Angala @ 5:59 am

Some educators who are faced with increasing numbers of students with autism in special-education and general-education classrooms say using assistive technology that reinforces visual -- rather than verbal -- skills and ties visual cues to the written word may be helpful. Other strategies districts should consider include better training for non-special-education teachers, access to evidence-based resources, support teams and partnerships between schools and parents. eSchool News

28 October 2009

California Court Rules that Private Insurer Must Pay for Autism Therapy

A Los Angeles trial court has issued a preliminary ruling that private insurance companies must pay for applied behavioral analysis treatments for children with autism. The Court found that a memo by a state agency permitting denials of coverage for such treatments was an in valid form of regulation that conflicts with a state law requiring insurers to cover mental and emotional health problems equally to physical problems. Here is the news article from the L. A. Times.

It should be noted that this is just a preliminary ruling. As long time readers of this blog know, legal disputes are never over until they're over. (I couldn't resist quoting Yogi Berra with the World Series on the horizon. Next year it will be the Cubs; do you know how many years I have been saying that?) The case has not yet been decided. There is much more yet to come.

If the preliminary ruling stands however, this could be an important decision. It

Bar chart of the number (per 1,000 U.S. reside...Image via Wikipedia

also may impact special education law. Many parents have attempted to have their school systems provide or reimburse for ABA treatments. These have sometimes been successful, but often get stuck in the methodology category. Since the Rowley decision, courts have held that methodology choices are the province of professional educators. Where a district program denied FAPE, however, some hearing officers and courts have ordered ABA programs. If insurance companies must pay for ABA treatments or programs, (and as I said above, we are a long way from that being "the law.") there may be fewer attempts to look to school districts to pay for such services.

What do you think about this?

20 October 2009

Cure for Autism?

I was listening to the radio while driving through Washington, DC today. One of the stations was having a series of listener support drives. One speaker was named Gary Null. He was offering a number of items as premiums in exchange for pledges from listeners. If it was not public radio, it sure sounded like it.

He talked a lot about immune system boosters and free radicals. One of the listener premiums available to listeners who pledged a contribution was a Berry/Fruit concoction that was supposedly good for one's immune system. He also referred to the staff of the FDA as "skunks", and argued that the FDA was under the control of the pharmaceutical industry. He urged listeners to vote against all congressional incumbents.

But what caught my attention was his remarks concerning autism. He claimed to have a protocol that he could recommend that would cure autism. He gave some examples of kids he has worked with who now have no symptoms associated with autism related disorders.

The connection with our topic here is a bit thin, I'll admit it. But there are a lot of decisions in special education cases in the last few years concerning methodology, especially in cases involving autism. Even though the law is pretty clear that school districts can upursue various methodologies so long as they provide FAPE to the student. So most of these cases don't go very far, but I'm thinking that if this Mr. Null claims to have a cure, we will likely see a bunch of cases involving his system.

What do you think? Is there a cure for autism? If so, will or should that affect the legal obligations of school districts? I predict some arguments on these points.
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24 July 2009

Girl Scouts honor girl for helping classmates with autism

Filed under: Autism, Special Education — ms.angala @ 4:36 pm
Shannon Elizabeth Evans of Cary, N.C., earned the Girl Scouts' highest honor, the Gold Award, in recognition of her work with students with autism at her high school. Evans developed and administered programs to improve physical and social skills for students with autism, working with them one-on-one for two months. The News & Observer (Raleigh, N.C.)

20 July 2009

Florida Autism conference

Filed under: Autism, News, Other Sites, Press, Training, behavior analysis, communication — JohnL @ 7:33 am
The Scott Center at Florida Institute of Technology in Melbourne (FL, US) will host its second annual conference on Autism 6 November 2009. The theme for this year is “Power and Potential of Communication,” and the featured speakers includ Mark Sundberg, Jim Carr, and Bridget Taylor. Link to the conference Website and to the Scott [...]

5 July 2009

Lawsuit challenges California insurers’ denial of autism therapy

Filed under: Autism, Special Education — ms.angala @ 12:05 pm
California regulations that allow insurers to deny treatment coverage to children with autism violate state laws, a consumer group contends in a lawsuit. Insurers say they are following the law and covering most autism care. They say they are allowed to deny coverage for applied behavior analysis because it is too expensive and is educational rather than medical. Los Angeles Times

25 June 2009

Chicago hospital offers an online site for autism services

Filed under: Autism, Special Education — ms.angala @ 8:58 pm
Chicago's Rush University Medical Center has created an online Autism Resource Center that lists area education options and disability services designed for children with autism. The resource also lists information fees, insurance and waiting lists. Chicago Tribune

4 June 2009

Marines investigate enlistment of man with autism

Filed under: Autism — ms.angala @ 2:11 am
The Marine Corps is investigating how a man with autism was allowed to enlist amid an allegation that the recruiter was told of his disability. A 2006 court order prevented Pvt. Joshua Fry, 21, from entering into contracts on his own; he faces a court-martial over unrelated allegations. San Diego Union-Tribune

26 May 2009

Minnesota teen with autism earns Eagle Scout honors

Filed under: Autism, Special Education — ms.angala @ 7:25 pm
Lucas Brown received his special award just last weekend, but what's even more amazing is just how much he had to overcome to get it.

High-school senior Lucas Brown, who is mildly autistic, has completed 21 merit badges and become an Eagle Scout. Brown will graduate with academic honors in June and plans to attend a trade school to study welding and fabrication. WCCO-TV (Minneapolis)
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